A Community of Support for Children with Rare Genetic Disorders
We stand as a beacon of hope, offering unwavering support, encouragement, and love to those affected by rare genetic disorders.
Why We Exist
Every rare diagnosis is a life turned upside down, questions, fears, and decisions no one should face alone. At GeneticsRose, we connect families with resources, advocates, and each other so they can navigate the unknown with confidence.
Empower Change, Ignite Hope! Act Now with GeneticsRose!
Take a step towards transforming lives and fostering understanding. Whether through a donation, volunteering your time, spreading awareness, attending events, starting a fundraiser, or staying connected, your action with GeneticsRose makes a meaningful impact.
Join us in creating a world where rare genetic disorders are met with empathy and unwavering support. Act now and be the change you wish to see.
Make A Difference.
Support GeneticsRose!
Your Involvement Changes Lives
Rare genetic disorders touch real families every day, families who need community, understanding, and tangible help. Whether you have time, resources, or simply a willing heart, your support fuels hope and progress.
Our Mission
GeneticsRose’s mission is to raise awareness and promote understanding of rare genetic disorders. We are dedicated to supporting, encouraging, loving, and caring for those affected by rare conditions, not only for the individuals but also for their families and friends.
We envision a future where rare genetic disorders are not insurmountable obstacles, but rather unique opportunities for individuals to shine and reach their full potential. We believe that every person deserves the chance to live a fulfilling and meaningful life, regardless of their genetic makeup.
Pillow Drive
GeneticsRose & Lovehasnodisability is collecting neck pillow to support families at Texas Children’s Hospital while their loved ones are in the TICU/PICU. These small comforts can make long hours at the hospital a little easier and provide much needed support during difficult times.
GeneticsRose Blog: Stories of Courage, Hope & Community
Sofia was diagnosed with Dandy-Walker Malformation, one of the more complex forms. In her case, the center part of her cerebellum was like a collapsed tunnel, making communication between the two sides of her brain difficult. On the right side, her cerebellum appeared like a crumpled wing due to the presence of a cyst.